A year or so ago, I was watching, “Say Yes to the Dress,” and heard a story about a woman who needed to find a dress in a short period of time. Her boyfriend had found out that he had Lou Gehrig’s Disease (ALS) for which there is no known cure, and had told her that he understood if she wanted to end the relationship, but if she wanted to stay with him, would she marry him? She said, “Yes,” and they wanted to have as much time together as possible so the wedding was planned quickly. She ended up finding the perfect dress, but it was too expensive, and at the end the owner of the shop gave her the dress for free. It was all very emotional.
Fast forward to about a month ago, and Michael Franti posted a link to a site to raise money for a couple who are living with Lou Gehrig’s, and it is the same couple, Hope and Steve Dezember! It was amazing, because I hardly ever watch TV and was so touched by their story. In the past year or so, Steve’s ALS has progressed, and this past week has found him in the hospital recovering from pneumonia, and going in and out of consciousness.
They have such a big love, and are amazing examples of living life in the moment, and treasuring each day. Their cause is called, “Hope For Steve.” Over the past few weeks, I have been thinking a lot about that name, and it’s double meaning. How incredible is it to be FOR your partner? I know it seems kind of obvious, but even in my own life, I find it’s easy to get caught up in busyness or something that I am mentally chewing on, and not really act, or speak, like I am FOR Alex. From talking with many other people, I know that I am not alone. It’s easy to get caught up in small things and make them bigger. It can be easy to live for ourselves, and end up getting defensive. It’s pretty humbling, and I am grateful to have this as an incredible reminder, not only of the brevity of life, but also to put energy toward the things that matter.
Anyhow, Hope is truly is FOR Steve, is currently staying home to care for him. They are living off of a small amount of disability and donations from caring people. Please check out their story, and like their page on Facebook (Hope For Steve). There you will be kept up on the latest news, and will assuredly be inspired by their story.
Here is the website where you can make donations: